"PAHUNCH"


Aim

The project is focused to work with Governments, thalassemia patients/parents, thalassemia centres, ngo's, media, schools, colleges, corporate and hospitals for the purpose of sharing information .


VISION STATEMENT:

  • Spread information about Thalassemia to aware the general masses.
  • Support the treatment of underprivileged Thalassemia children.
  • Reach out to Govt. authorities with issues & suggestions to improve the quality of life for thalassemics.
  • Availability of safe blood for all thalassemics.

Tools:


1 Awareness on Thalassemia:

Support requested from corporate/schools/colleges/institutions/RWA's: As India's growing population, awareness about the disorder is much needed. Our mission is to eradicate Thalassemia by 2025. Please support us in spreading awareness about the disorder on Thalassemia in offices/school/colleges/institutions/clubs.
If you wish, to arrange a talk on Thalassemia, please contact our office at A-9 Nizamuddin West New Delhi-110013, Telephone no's: 011-41827334, 46595811 or send an email to thalcind@yahoo.co.in. or info@thalassemicsindia.org


Support requested from Media

We would request media to connect with us for spreading information about Thalassemia in general masses for public awareness.


Support from the State Govt.

We cannot achieve much without getting support from the Delhi govt. for which we need co-operation from Thalassemia community as well. Do send us your suggestions so that we can take up the issues with Govt.


2 Blood Donation Camps:

In Delhi alone, there are approximately 2000 thalassemia patients who require 1 to 3 units of blood in a month. On an average 50,000 to 60,000 units of blood is required by them in a year. Thalassemics India tries to help for meeting their requirements of blood by holding Blood Donation Camps. Help us in organizing blood donation camps!


3 Collection of funds for underprivileged thalassemics:

Thalassemia patients need regular blood transfusions, iron chelation drugs, leucocyte blood filters, infusion pumps, needles and lab investigations. The cost of treatment is Rs.1- 3 lacs per year/ per patient. We need your support so that we can give them free of cost medicines, filters and other items. Thalassemics India is eligible for 80G tax exemption. Come forward to help us in this drive!


4 Seeking help from Govt:

To reach out to Govt. authorities with our issues and problems, we need your suggestions and feedback.


Conferences:


Abu Dhabi Conference: 2013

The society supported the visit of 3 of our members (thalassemics) to the 13th International Conference on Thalassemia and Hemoglobinopathies and 15th TIF International Conference for Parents and Patients, Abu Dhabi .


14th International Conference on Thalassaemia & Haemoglobinopathies and 16th TIF International Conference for Patients and Parents, Greece
The conference spoke about the newer drugs and their stages of research..among many other newer protocols in management of Thalassemia.


The conference spoke about the newer drugs and their stages of research..among many other newer protocols in management of Thalassemia.


We are happy to announce that Mrs. Shobha Tuli, Secretary, Thalassemics India has been re-elected Vice President of Thalassaemia International Federation.


Thalassemia Awareness Talk
Thalassemics India participated in DAV United at Indira Gandhi Institute for Arts,New Delhi. A huge gathering of all DAV schools across india. Thalassemics India had a stall with information material on Thalassemia to help spread awareness among students,parents & teachers.. there were interactive sessions with those that visited the stall. People got to know about the genetic blood disorder. The event was over three days (21-23 December,2018) which was managed and participated by Rashmi Kalra, Swati Tuteja & Sonam Madaan...the initiative was taken by Nehal Dhingra.

Delhi school of professional studies and research ,rohini,delhi took a great initiative to spread awareness on Thalassemia! Swati Tuteja & Sonam Madaan from Thalassemics India gave informative talk on Thalassemia. This is a shout out for everyone help us in spreading awareness & arranging blood donation.