Stories

My name is Sonam Madaan, and I have thalassemia major from when i was six months old. I require regular blood transfusions every month to keep me healthy and active. The whole process of transfusion takes seven or eight hours, which means I have to spare a full day once every two weeks. There are a lot of complications associated with thalassemia, especially transfusion-related iron overload which requires chelation therapy on a daily basis, and this feeling of knowing that excess iron overload can damage my heart and liver is intimidating. But thanks to the expert care I receive from my doctors, support from my family and my society, I am able to lead a fulfilling and rewarding life.

I am Shivika Garodia, thalassemia major. I belong to a small town Bahraich (near lucknow). I take regular transfusions every 15 days since i was one year old. My dream is to be a successful photographer and to achieve this i am doing a diploma course in Delhi. There is nothing that a thalassemic child cannot do. Sometimes its very hard and i struggle a lot to keep my ferritin low and maintain my health in this competitive world. But I am blessed with very supportive family, friends, doctors and society.