2016 Activities
Recent Activities

60 Thalassemics visited the Check Up Clinic at Sir Ganga Ram Hospital

 

Abstract Book

Recent Activities
2016

 

International Thalassemia Day -8th May,2016


 

 

Fund Raiser event: April 18th, 2015
Thalassemics India hosted an evening of Sufi music with Sonam Kalra and the Sufi Gospel Project. This was a fund raiser event to collect funds to support the treatment of under privileged Thalassemia children. The function held at Siri fort Auditorium from 7.30 pm onwards on April 18th. This evening saw an audience of around 350 people.

The International Thalassemia day was observed at Sri Sathya Sai International Centre on May 8th. This year was special as it was ‘By the Thalassemics and For the Thalassemics’.

The Chief Guest was Mrs. Maneka Sanjay Gandhi, Union Minister for Women and Child Development. She assured all possible support to the society and Thalassemics.

The programme started with lamp lighting and vandana sung by our talented Swati Tuteja Our group of children, trained by ShamakDavar’s institute of Dance performed a Bollywood medley. Then Jyoti Arora (from Delhi) and Chandan Das (from Orissa), our 2 brilliant authors spoke about their books- Lemon Girl & The Road Taken which have been published and are doing well. Thereafter PriyaNandini from Bangalore gave fabulous performance along with her father, Lekhraj accompanying her on the guitar. At such a young age PriyaNandini had been singing on stage and receiving many accolades. The evening ended with a rocking performance by Shivangi Amrit from Mumbai. Shivangi has received training at the A R Rahman conservatory and today is an independent musician and an amazing singer.

The Programme was compered by Nehal Dhingra. The programme was attended by more than 500 people including doctors, senior sisters, social workers, a number of people from blood banks and thalassemia families. Thalassemics India thanked the performers and the senior sisters by honoring them with gifts.The function was followed by dinner.

The programme was very well covered by press.
As a part of our efforts on spreading awareness about thalassemia, we had used the medium of the radio to share messages about thalassemia over May 6th, 7th and 8th.

Annual Picnic / Outing
On May 20th, fifty Thalassemics and their parents were taken to Kingdom of Dreams, Gurgaon to see the show ‘Jhumroo”. The second batch was taken to KOD on June 17nth. After the show the children are given smart cards which allow them entry to the culture gully and get some snacks.
2013
60 Thalassemics visited the Check Up Clinic at Sir Ganga Ram Hospital on 23rd -24th November,2013 from Delhi Punjab, Hissar, Jammu, Bangalore, Mumbai, Kanpur, Jodhpur, Ahmedabad, Nepal & Fiji. Thanks a lot to the visiting doctors from U.K.- Dr. Malcolm Walker, Dr. Ratna Chatterjee & Dr. Rekha Bajoria. Thalassemics India is also thankful to Dr. Alka Mathur & Dr. Sunil Gomber for assisting this clinic. Special thanks to Sir Ganga Ram Hospital for their courtesy extended to us for holding the clinic.
The society supported the visit of 3 of our members (thalassemics) to the 13th International Conference on Thalassemia and Hemoglobinopathies and 15th TIF International Conference for Parents and Patients, Abu Dhabi .
On International Thalassemia Day, 8th May, a Cultural Programme was held at Sri Sathya Sai International Centre, Lodhi Road (opp. Sai Baba Temple ) from 5.30pm to 7.00pm. Dr. A.K. Walia, Health Minister of the Govt. of Delhi was the Hon'ble Chief Guest. Maria Michail, Cyprus High Commissioner was the Guest of Honour.
More than 50 thalassemic children performed on stage. Five adult thalassemics were felicitated by the society who have excelled in different fields. Prizes were given to school students for slogan and poster writing competition.
A group of 200 thalassemics & their parents visited Kingdom of Dreams, Gurgaon to watch the most famous musical comedy show "JHUMROO" on stage with bollywood songs. Thanks to the organizers for giving them an opportunity to enjoy the show.

2012
5TH International Conference On Thalassemia 24th-25th November, 2012
Check up Clinic on 19th Nov,2012 at Sir Ganga Ram Hospital